Brody Meaux is the 14-year-old son of Jimmy and JoAnn Meaux. He has MeCP2 duplication syndrome.
MeCP2 duplication syndrome is a neurological condition that occurs almost exclusively in males and is characterized by moderate to severe intellectual disability, weak muscle tone, feeding difficulties, poor or absent speech, seizures that may not improve with treatment, muscle stiffness, GI problems, delayed development of motor skills and recurrent respiratory tract infections.
Most children with the syndrome tend to regress over time. Respiratory infections are a major cause of death in individuals by early 20s.
Brody lost three uncles and a cousin to this syndrome. He is totally dependent on others for his everyday life.
There is no cure, but there is hope! Doctors are waiting for funding for research to help find a treatment or cure.
Brody's Bunch is hosting a Run for Research on Saturday, November 16th at Iowa City Park. The 5K/1K walk/run begins at 8:00 A.M. The registration fee is $25 and includes a t-shirt if you register by Friday, November 1st.
If you are interested in participating, e-mail JoAnn Meaux.
You will see Brody's story Wednesday night on Nightcast at 10:00 P.M.
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