2301 North Boulevard
Baton Rouge, LA 70806
Hrs: 10:00am - 2:00pm
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
The Strategies defined at the "Wingspread" meeting laid the foundation for today's Association. Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.
Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.
Organize and/or participate in national and regional educational conferences. Develop and promote the implementation of service programs that will be in Sickle cell disease is an inherited blood disorder that affects red blood cells.
People with sickle cell disease have red blood cells that contain mostly hemoglobin S, an abnormal type of hemoglobin. Sometimes these red blood cells become sickle-shaped (crescent shaped) and have difficulty passing through small blood vessels. Normal red blood cell Sickle-shaped red blood cell When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.